Abstract: Social support is a crucial factor in caregiving of dementia patients. The existence of informal social support has been shown to reduce the caregiver burden. However little is known about itsexistence and its influenceoncaregiver burden of dementia especially in local setting. Therefore the objectives of this study were to identify the association between social support and burden. Methods: A cross sectional study was done using validated questionnaires via guided interview wasconducted among informal primary caregivers of dementia patients from five major hospitals in Sarawak, Malaysia. Result: Hundred and forty-five informal primary caregivers were recruited. The overall mean score of social support was 57.1 (± 13.06) whereby 49% of caregivers perceived that they had good informal social support and 51% had poor informal social support. There are significant association between informal social support from family and caregiver burden (p<0.05). Conclusion: These group of caregiversreceived all the informal social support from family, friends and significant others. However it was found that only informal social support from family wasassociated with caregiver burden.Strengthening of family relationship, responsibility and development of formal social support services should exist in addition to help the caregivers whom lack of the social support.
Keywords: caregiver burden, dementia, informalsocial support, Malaysia
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